Support Group for Sun Sensitive People
Forum Click to join! Website: http://sun1.awardspace.com/  

We are a support group for people who suffer from sun sensitivities such as solar urticaria, lupus, porphyria, sun rash, sun hives, photosensitivity, sun allergy, rheumatoid arthritis, xeroderma pigmentosum, albinism and more. We share our experiences and ways of coping and living with sun sensitivity such as sunscreens, clothing, hats, sunglasses and the effectiveness of medical treatments.

 
  

Website

sun1.awardspace.com
    

Support Group & Forum

Click to join our group or read messages
 

Information by our group

Sunscreens

Sun Protection


Diagnosing Photosensitivity

What's wrong with me?
   Diagnostic chart
     

Sun Sensitive Conditions

  Causes of Photosensitivity

  Chemicals
 
Drugs/medications 
    

  
Cures/Treatments

     PUVA Therapy
  

 
Research

    Actinic prurigo
    PMLE Research
    Hereditary PMLE
    Lupus Research
 
Sun Protection
    Sunscreen research
    
Drug Treatments
  Cyclosporine R&D
  

 

 

Our Forum is at http://health.groups.yahoo.com/group/sun1

Welcome new members!

First you need to become a member of yahoo (if you are not already a member of yahoo).  Click to join yahoo!

Next, join our support group for sun sensitive people. Click to join our group!   We need to keep out the spammers and other bad people, so all new members must be approved. Let us know why you want to join the group, so we can tell that you are not a spammer.

Cookies: You need to allow Yahoo be able to set cookies. On Internet Explorer, select the  Tools menu, Internet Options, select Privacy tab, click Sites button, type in yahoo.com into the text box, then click Allow. Click Ok to exit out.

Once you are approved, messages  will be sent to your yahoo email account (or whatever you set up for email), or the messages can be viewed at the forum website.  http://groups.yahoo.com/group/sun1/messages?o=1 

Introduce yourself to the group and say hi!
Describe your medical condition, any problem and any questions that you may have. If you have suggestions for sun 
protection, please share them. If you have tried sun related stuff that was a great help or just a waste of money, 
please share that too. If you have had treatments or medications for sun sensitivity, please share your experience. 
Any success/ failure or side effects with the treatment is helpful to others considering take the treatment. If you 
had a bad day and need some support, share that too.
http://health.groups.yahoo.com/group/sun1/post

You can also reply to messages from the group.

To start sending messages to members of this group, simply send email to
sun1@yahoogroups.com

Or you can view archived messages at the forum website.
http://groups.yahoo.com/group/sun1/messages?o=1

We have a page on sunscreens that can help you understand about the different light sensitivities and sunscreens. 
Many of us are sensitive to both UVB and UVA light. Most sunscreens only protect against UVB light leaving us 
unprotected against UVA light. Newer sunscreens protect against UVA light. Do you get "burned" through car windows? 
If so, then you might be sensitive to UVA light and a UVA sunscreen can be beneficial.
http://sun1.awardspace.com/Sunscreens/sunscreens.htm

Sunscreen reviews 
If you want to write a sunscreen review that I can link to the website, just post a new message with "Sunscreen 
review for name of sunscreen" Let us know if you liked or hated the sunscreen and why. Too sticky, white, makes a 
difference in your sun tolerance or not, etc. What is your medical condition and your light sensitivity if you know 
it (UVA, UVB, or visible).

 


Do consult with your doctor regarding any treatments or medical advice suggested by this website.
  We are not doctors, we are people trying to learn about our conditions and better our lives. We try to be accurate, but the articles and advice may have errors or even give bad advice.
Copyright 2006 Support Group for Sun Sensitive People Contact: Email