Support Group for Sun Sensitive People
Forum Click to join! Website: http://sun1.awardspace.com/  

We are a support group for people who suffer from sun sensitivities such as solar urticaria, lupus, porphyria, sun rash, sun hives, photosensitivity, sun allergy, rheumatoid arthritis, xeroderma pigmentosum, albinism and more. We share our experiences and ways of coping and living with sun sensitivity such as sunscreens, clothing, hats, sunglasses and the effectiveness of medical treatments.

 
  

Website

sun1.awardspace.com
    

Support Group & Forum

Click to join our group or read messages
 

Information by our group

Sunscreens

Sun Protection


Diagnosing Photosensitivity

What's wrong with me?
   Diagnostic chart
     

Sun Sensitive Conditions

  Causes of Photosensitivity

  Chemicals
 
Drugs/medications 
    

  
Cures/Treatments

     PUVA Therapy
  

 
Research

    Actinic prurigo
    PMLE Research
    Hereditary PMLE
    Lupus Research
 
Sun Protection
    Sunscreen research
    
Drug Treatments
  Cyclosporine R&D
  

 

 

Other Sun Protection Products: Window films and UV shields, etc.

 

Indoor lights:

For maximal UV protection, acrylic diffusion shields should be placed over bare fluorescent light tubes/bulbs at home and at work to block the small amount of UV irradiation that can leak from such light sources (UVA greater than UVB). [Sun Protection and Sunscreens]

A simpler alternative may be to replace fluorescent lights with incandescent lights (normal light bulbs).

Window films for automobiles and houses:

Before you invest a lot of money in these products, check with state regulations for car window films or tinting. Some states don't allow it.

Window glass blocks virtually all UV-B and at least half of all UV-A energy. But for people that are extremely sensitive to UVA, you may need to get window shields that block out all of the UVA energy (315-400 nm).

UV blocking plastic adhesive films can be applied to home and automobile windows. A number of companies offer UV light blocking films or plastic shields that can be applied to home and automobile windows. This is important because whereas window and car glass material may offer some shielding against UVB rays, they are transparent for UVA rays. More information on these products can be obtained through the Internet (e.g., Solis Films [southwall.com]; North Solar Screen [northsolarscreen.com]; Llumar UV shield window film [llumar.com])[Sun Protection and Sunscreens]

The XP Society has many links for window films:
http://www.xps.org/xp-uvlinks.htm 

Automotive window film state laws for the U.S.
 
Automotive window film Canadian Province Laws

Outdoors

Using common sense, you can estimate protection from the sun. Shade can be  from trees or other sun shields such as roofs or umbrellas.  If shade from trees blocks out half the sky, you have twice the protection from the sun as without trees. Twice the protection means you can last twice as long in the shade as you would without shade. UVB light is directly related to how bright the sun is, so exposure to UVB in winter months is much less than summer months. UVA is almost constant all year long.

UV Facial masks

There is a clear  plastic facial mask for those of us with extreme UV sensitivity such as XP.


Do consult with your doctor regarding any treatments or medical advice suggested by this website.
  We are not doctors, we are people trying to learn about our conditions and better our lives. We try to be accurate, but the articles and advice may have errors or even give bad advice.
Copyright 2006 Support Group for Sun Sensitive People Contact: Email