Support Group for Sun Sensitive People
Forum Click to join! Website: http://sun1.awardspace.com/  

We are a support group for people who suffer from sun sensitivities such as solar urticaria, lupus, porphyria, sun rash, sun hives, photosensitivity, sun allergy, rheumatoid arthritis, xeroderma pigmentosum, albinism and more. We share our experiences and ways of coping and living with sun sensitivity such as sunscreens, clothing, hats, sunglasses and the effectiveness of medical treatments.
 
  

Website

sun1.awardspace.com
     

Support Group & Forum

Click to join our group or read messages
  

Information by our group

Sunscreens

Sun Protection


Diagnosing Photosensitivity
What's wrong with me?
   Diagnostic chart
     

Sun Sensitive Conditions

  Causes of Photosensitivity

  Chemicals
  Drugs/medications 
    

  
Cures/Treatments
     PUVA Therapy
   

 
Research
    Actinic prurigo
    PMLE Research
    Hereditary PMLE
    Lupus Research
 
Sun Protection
    Sunscreen research
    
Drug Treatments
  Cyclosporine R&D
  

 

 

Reviews of treatments by our support group

Group Member Reviews

To review a treatment:
If you want to share how good or bad your treatment for a photosensitive condition was, post a message to the  our group forum.  I  should add the link to this page. 

To review a treatment on this page, just click the link, and add your experience. For example, if you have had PUVA, let us know how it went. (You must be a member of the group.)

Treatment Message Link
PUVA http://health.groups.yahoo.com/group/sun1/messages/186?xm=1&threaded=1&m=e 
   

 


Do consult with your doctor regarding any treatments or medical advice suggested by this website.  We are not doctors, we are people trying to learn about our conditions and better our lives. We try to be accurate, but the articles and advice may have errors or even give bad advice.
Copyright 2006 Support Group for Sun Sensitive People Contact: Email