Support Group for Sun Sensitive People
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We are a support group for people who suffer from sun sensitivities such as solar urticaria, lupus, porphyria, sun rash, sun hives, photosensitivity, sun allergy, rheumatoid arthritis, xeroderma pigmentosum, albinism and more. We share our experiences and ways of coping and living with sun sensitivity such as sunscreens, clothing, hats, sunglasses and the effectiveness of medical treatments.

 
  

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Information by our group

Sunscreens

Sun Protection


Diagnosing Photosensitivity

What's wrong with me?
   Diagnostic chart
     

Sun Sensitive Conditions

  Causes of Photosensitivity

  Chemicals
 
Drugs/medications 
    

  
Cures/Treatments

     PUVA Therapy
  

 
Research

    Actinic prurigo
    PMLE Research
    Hereditary PMLE
    Lupus Research
 
Sun Protection
    Sunscreen research
    
Drug Treatments
  Cyclosporine R&D
  

 

 

Diagnosing Sun Sensitivity (Photosensitivity)
What's wrong with me?

You can be sensitive to the sun for a number of reasons: a disease such as lupus, a photosensitive drug you are taking, or something in your environment like celery, limes, perfumes, genetics, and other reasons. Photosensitivity is  an abnormal response of the skin to sun exposure. For example,  you get a sunburn in only a very short amount of time, or your reactions are extreme for the amount of sun exposure.

These are just a few causes of photosensitivity:

  • Solar urticaria
  • Systemic lupus erythematosus
  • Drug reactions (phototoxic and photoallergy)
  • Xeroderma pigmentosum
  • Polymorphous light eruption
  • Hydroa vacciniforme
  • Porphyria
  • Hartnup's disease

Links for diagnosing sun sensitivity (photosensitivity)

The Best Practice of Medicine website has several good pages and charts for determining what can be the cause of why you are sensitive to the sun (photosensitivity).  You may want to print these pages out and take them with to your doctor. 

Other resources for diagnosing sun sensitivity:

Pictures of various sun sensitive conditions

Search using the alphabet for your sun condition. Quite good, many pictures for some conditions.
DermIS - Online dermatological atlas

Dermatology Image Atlas - John Hopkins University  http://dermatlas.med.jhmi.edu/derm/ 

University of Iowa: http://tray.dermatology.uiowa.edu/DermImag.htm 

What are the statistics of photosensitivity disorders?

A study of 203 patients over a 7.3 year period was conducted. The mean age was 50 years, and 63% of the patients were women. 

Most frequent diagnoses (percent of total patients):

  • Polymorphous light eruption - (26%)
  • Chronic actinic dermatitis ( 17%), 
  • Photoallergic contact dermatitis (8%), 
  • systemic phototoxicity to therapeutic agents (7%), 
  • and solar urticaria (4%). 

Positive photopatch reactions, patch test reactions, or both were observed in 40 (29%) of the 138 tested patients. The frequencies of the positive photopatch test reactions were sunscreens (57%), fragrances (18%), and antimicrobial agents (13%). Of the positive patch test responses, fragrances elicited 47% of the total positive reactions, followed by sunscreens (39%) and antimicrobial agents (7%). [J Am Acad Dermatol. 1995 Oct;33(4):597-602. Results of evaluation of 203 patients for photosensitivity in a 7.3-year period. Fotiades J, Soter NA, Lim HW.]  Entrez PubMed


IN WORK

Table 1. Classification of sun related skin conditions (photodermatoses)

Drug photosensitivity:

Systemic phototoxicity (caused by ingesting something)
Systemic photoallergy (caused by ingesting something)
Phototoxic contact dermatitis (something contacts the skin) 
Photoallergic contact dermatitis (something contacts the skin)

Photo-aggravated skin conditions

Endogenous eczema
Collagen vascular disease

Idiopathic acquired photodermatoses
(Sun related skin conditions from an unknown cause)
Polymorphic light eruption
Actinic prurigo
Hydroa vacciniforme
Solar urticaria
Chronic actinic dermatitis
Genetic & Metabolic disorders

Porphyrias
Genodermatoses
o Xeroderma pigmentosum
o Cockayne's syndrome
o Bloom's syndrome

Nutrional deficiencies
o Pellagra
o Hartnup disease [Kwok]

 

 


References:

[Kwok] Evaluation of A Photosensitive Rash, DR Colin Kwok, NSC Bulletin For Medical Practitioners -> Vol 11 No 1, 2000, National Skin Centre [National Skin Center]

[Pediatric]  Color Textbook of Pediatric Dermatology 
http://www.harcourt-international.com/e-books/viewbook.cfm?ID=227 

Photodermatology and Photodermatoses Chapter 28

 


Do consult with your doctor regarding any treatments or medical advice suggested by this website.
  We are not doctors, we are people trying to learn about our conditions and better our lives. We try to be accurate, but the articles and advice may have errors or even give bad advice.
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