Support Group for Sun Sensitive People
Forum Click to join! Website: http://sun1.awardspace.com/  

We are a support group for people who suffer from sun sensitivities such as solar urticaria, lupus, porphyria, sun rash, sun hives, photosensitivity, sun allergy, rheumatoid arthritis, xeroderma pigmentosum, albinism and more. We share our experiences and ways of coping and living with sun sensitivity such as sunscreens, clothing, hats, sunglasses and the effectiveness of medical treatments.
 
  

Website

sun1.awardspace.com
     

Support Group & Forum

Click to join our group or read messages
  

Information by our group

Sunscreens

Sun Protection


Diagnosing Photosensitivity
What's wrong with me?
   Diagnostic chart
     

Sun Sensitive Conditions

  Causes of Photosensitivity

  Chemicals
  Drugs/medications 
    

  
Cures/Treatments
     PUVA Therapy
   

 
Research
    Actinic prurigo
    PMLE Research
    Hereditary PMLE
    Lupus Research
 
Sun Protection
    Sunscreen research
    
Drug Treatments
  Cyclosporine R&D
  

 

 

Xeroderma Pigmentosum

 

Xeroderma Pigmentosum Society  Learn about xeroderma pigmentosum, a rare genetic disease, and about the Xeroderma Pigmentosum Society (XPS), dedicated to helping XP patients and their families.

 

Xeroderma Pigmentosum Family Support Group

Camp Sundown XP Society Camp Sundown A camp for children  and adults with XP or other sun sensitive conditions like solar urticaria.


Do consult with your doctor regarding any treatments or medical advice suggested by this website.  We are not doctors, we are people trying to learn about our conditions and better our lives. We try to be accurate, but the articles and advice may have errors or even give bad advice.
Copyright 2006 Support Group for Sun Sensitive People Contact: Email