Support Group for Sun Sensitive People
Forum Click to join! Website: http://sun1.awardspace.com/  

We are a support group for people who suffer from sun sensitivities such as solar urticaria, lupus, porphyria, sun rash, sun hives, photosensitivity, sun allergy, rheumatoid arthritis, xeroderma pigmentosum, albinism and more. We share our experiences and ways of coping and living with sun sensitivity such as sunscreens, clothing, hats, sunglasses and the effectiveness of medical treatments.

 
  

Website

sun1.awardspace.com
    

Support Group & Forum

Click to join our group or read messages
 

Information by our group

Sunscreens

Sun Protection


Diagnosing Photosensitivity

What's wrong with me?
   Diagnostic chart
     

Sun Sensitive Conditions

  Causes of Photosensitivity

  Chemicals
 
Drugs/medications 
    

  
Cures/Treatments

     PUVA Therapy
  

 
Research

    Actinic prurigo
    PMLE Research
    Hereditary PMLE
    Lupus Research
 
Sun Protection
    Sunscreen research
    
Drug Treatments
  Cyclosporine R&D
  

 

 

Hydroa vacciniforme (related to polymorphous light eruption)

Hydroa vacciniforme is a rare childhood sun related disorder with blisters on sun exposed areas of the body that may heal with  vacciniforme scarring.  It starts on the face on both cheeks and nose.  Numerous small blisters ( vesicles ) develop on the area on the face, in spring or summer.  Slowly blackish crusts appear and scarring occurs on healing. [ Skinpatient's world] Onset is usually in childhood and spontaneous resolution by early  adulthood. Some people may have  associated latent Epstein-Barr virus (EBV) infection. [Hydroa Vacciniforme]

Links with pictures/images for hydroa vacciniforme::
 http://dermatlas.med.jhmi.edu/derm/result.cfm?Diagnosis=-716555359   
 http://www.skinatlas.com/hydroa1.htm  
 http://dermis.multimedica.de/dermisroot/en/28784/diagnose.htm 

A web page  written for doctor  with different treatment recommendations for hydroa vacciniforme:
 http://www.emedicine.com/derm/topic181.htm  

Support group:
http://health.groups.yahoo.com/group/HydroaVacciniforme/
 

 


Do consult with your doctor regarding any treatments or medical advice suggested by this website.
  We are not doctors, we are people trying to learn about our conditions and better our lives. We try to be accurate, but the articles and advice may have errors or even give bad advice.
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