Support Group for Sun Sensitive People
We are a support group for people with sun and light sensitivities.
Our members live in nations throughout the world. Founded in April 2006, we are proud of having hundreds of SUN1 members.
Join us. Living with extreme photosensitivity can be frustrating or depressing. Family and friends often don't quite understand what we go through, so sharing experiences with each other can help us cope. Sharing our knowledge, wisdom, suggestions, and problems can make a world of difference in our lives.
Sun sensitivity may appear as bad sunburn or rash. Reaction usually occurs after a very short amount of exposure time. Some people experience an immediate reaction and others react after a delay. Sun sensitivity can be due to a primary medical condition, or side effect from medication, or reaction to product ingredients. Other terms for sun sensitivity include: photoreaction, photoallergic, photosensitivity, phototoxic. Diagnoses include solar urticaria, lupus, porphyria, sun hives, polymorphic light eruption, sun allergy, and other light reactive conditions. We share our day-to-day experiences and ways of living with sun sensitivity. We discuss coping techniques such as sunscreens, clothing, and medical interventions. SUN1 is a place to feel comfortable exchanging ideas, discussing concerns, and asking questions.
TO JOIN AND READ MESSAGES:
Membership is limited to people with light sensitivity, and persons who care about people with light sensitivity. Group management approves new members.
First you need to become a member of yahoo (if you are not already a member of yahoo). Click to join yahoo!
Next, join our support group for sun sensitive people. Click to join our group! Let us know why you want to join our group. We want to keep out the spammers and other bad people, so all new members must be approved.
Once you are approved, you can choose to have messages sent to you as individual messages or as a daily digest, or the messages can be viewed at the forum pages. Please introduce yourself to the group and say hi! We welcome a description of problems and any questions. Share your suggestions for protection from the sun. If you have tried sun related stuff that was a great help or just a waste of money, please share your opinions. If you have had treatments or medications for sun sensitivity, share your experience because your success/ failure or side effects with the treatment is helpful to others considering the treatment. If you had a bad day and need some support, share that too. All members are welcome to reply to group messages. Archived messages at the forum website can be viewed for a treasury of helpful ideas.
This is a partially moderated list. Personal attacks will not be tolerated. SUN 1 is not a place to discuss politics or religious beliefs. Information is kept in confidence and not shared or sold.
Disclaimer: The information provided on this site is designed to support, not replace, the relationships that exist between visitors to this site and their health practitioners. Consult with a clinician regarding any treatments or medical advice suggested by this forum. We are not physicians; we are people trying to learn about our conditions and ways to cope.
We are not physicians, we are people trying to learn about our conditions and better our lives. We try to be accurate, but the articles and advice may have errors, become out-of-date, or even give bad advice.